A Note from One of My Migraine Group Members
I received this post in my Stanton Migraine Protocol migraine group on Facebook, and I am sharing it with the permission of the author, TK, posted on 4/17/2020 (if you are a group member, you can see the post here–this is only visible to members):
I got an email today from the Migraine World Summit (MWS), asking for my input after they wrapped up their conference. I have mixed feelings about them. When I first discovered their work in 2017 I was so sick, and desperate, and lonely in my condition which I knew no one else with, and which felt so isolating. Their serious attention to migraine and the compassion they offered was a lifeline. I especially appreciated MWS’s work destigmatizing and supporting the emotional difficulty of migraine. That conference led me to see a neurologist for the first time, and that visit, while empowering in some ways, was so disappointing to me (“here, take Topomax”) that I renewed my own search for a natural remedy. That led me to Angela Stanton and SMP. So while the MWS is misguided in their foundational beliefs about migraine, I do credit them with helping me start taking charge of my own condition. I believe they mean well, despite being under Big Pharma’s spell. That’s why I took the time to write some comments/feedback for next year’s event. Here’s what I submitted:
“I know that you will probably write me off as a crazy Stanton cult member, since this is the constant refrain from many in the pharmaceutical-devoted wing of the migraine world, so I’m not sure it’s even worth my time. But I feel so sad for those who never consider the Stanton Migraine Protocol, or write it off as “snake oil” because they are threatened by the idea that we could understand and manage our brain chemistry rather than just survive or medicate it. I have been kicked out of FB groups (managed by big Pharma) and had comments blocked, just for mentioning to others that the Stanton Migraine Protocol has changed my life and to look into it. I have sensed a similar lack of openness from the MWS. Angela Stanton is a pioneer and pioneers in any field are often pariahs at the outset. There’s a reason her research goes against the conventional wisdom–because the conventional wisdom has failed to explain, cure or support so many of our conditions. If you want to show that you are truly open to the cutting edge of science and health, I suggest you invite Angela Stanton to speak at your next summit about her migraine protocol. I doubt your big Pharma sponsors will let her slip in, b/c what she advocates is so threatening to the status quo—that we don’t need drugs to moderate migraine. Only a different understanding of neurochemistry, nutrition and metabolism. Stanton has been a speaker at countless other health conferences and is very involved in the Keto, low carb, and metabolic health scene. She’s no outlier anymore, and your resistance to including her is soon going to look foolish. I hope you reconsider. If you do, and I see her included next year, I will happily eat my words, and definitely support and attend. Thanks for your time and for what I believe is well intentioned work on behalf of our wellness.”
If anyone else has gotten the MWS survey and has a few extra minutes, I encourage you to submit your own version of the above! I know it’s unlikely, but we can be like the million little rain drops that erode a stone… Plus, when Angela’s work is someday recognized as the important shift that it is and becomes mainstream, I want to know I did everything I could to help get the word out! (I like being on the cutting edge. 😁)
Sorry so long! 💜
