Cluelessness At Its Best

I posted a very negative review on Yelp about a hospital where my mom was grossly misdiagnosed based on symptom treatment rather than medical tests. This diagnosis took her like after 6 weeks of torture. I now have evidence–vie autopsy–that she was indeed completely misdiagnosed.

I posted a negative review before I knew the autopsy and look what they are asking me to do now! This is completely public information that I do have the right to share since all information is visible to all on yelp, but I have removed the names and contact information of the person who sent the note for security. You can find the public post here if you have a Yelp account or maybe even without.

Negative Yelp Review

  • Hi Dr. Angela!
    St. Jude prides itself on delivering the highest quality patient care and we are so sorry for your experience more than a year ago. We are in the process of rectifying some of the negative reviews on our Yelp account and I was wondering if you would consider taking this review down or improving the rating. We hope that you have since received fair and helpful services at St. Jude. If this issue is still an ongoing one, please feel free to reach out to me personally to see how I can help. We greatly appreciate your consideration and look forward to serving you in the future.
  • DrAngela S.
    • DrAngela S.  (this  is me so I leave my name up for your view)
    Dear X…,My mother’s autopsy came in and is in complete conflict with the diagnosis one of your doctors gave, which ultimately, after 6 weeks of total torture, took her life away.

    Rather than removing the case I actually would  prefer to advertise and let the world to know how horrible treatment and malpractice your hospital is involved in–I will find a way to make it publicly known. The saddest part is that even as a scientist doctor myself I was not able to convince your doctors of the wrong diagnosis; they were not willing to prove me wrong or right; I was just ignored and told things like “you mother cannot have serotonin syndrome because it is rare”! I think your doctors are extremely unprofessional and uneducated. If I had an emergency and you were the nearest hospital I would beg to be taken to a hospital farther!

    Unfortunately in the case of my mom I was right and the diagnosis I gave was the correct one. Your doctors were wrong and clueless. It cost her life.

    The fact that St. Jude doctors are not even willing to listen to patient history and dare to jump into symptom treatment is terrible. If it leads to death, it is horrible.

    My ratings are not adjustable; the damage is done. I am glad I am a medical professional and so my review has weight. I hope as many people stay away from St. Jude as possible.

    St. Jude provided the worst care a hospital can give. I am glad you are rectifying some of the issues but that will not bring my mom back nor the many other people who were given the status of “hospital delirium” which does not exist; it merely means “we have no clue.” Shame on St. Jude doctors! Nothing will change the rudeness of your doctors and their total incompetence that my mom and I had to endure!

    Sorry. I cannot change my experience. It is spilled milk. I hope you understand.

    Angela A. Stanton, PhD.

    Please feel free co contact me, I only bite if you want to bite me!

About Be Healthy

Angela A Stanton, PhD, is a Neuroeconomist who evaluates changes in behavior, chronic pain, decision-making, as a result of hormonal variations in the brain. She lives in Southern California. Her current research is focused on migraine cause, prevention and treatment without the use of medicines. As a migraineur, her discovery was helped by experimenting on herself. She found the cause of migraine to be at the ionic level, associated with disruption of the electrolyte homeostasis, resulting from genetic mutations of insulin and glucose transporters, and voltage gated sodium and calcium channel mutations. Such mutations cause major shifts in a migraine brain, unlike that of a non-migraine brain. A non-migraineur can handle electrolyte changes on autopilot. A migraineur must always be on manual guard for such changes to maintain electrolyte homeostasis. The book Fighting The Migraine Epidemic: How To Treat and Prevent Migraines Without Medicines - An Insider's View explains why we have migraines, how to prevent them and how to stay migraine (and medicine) free for life. As a result of the success of the first edition of her book and new research and findings, she is now finishing the 2nd edition. The 2nd edition is the “holy grail” of migraines, incorporating all there is to know at the moment and also some hypotheses. It includes an academic research section with suggestions for further research. The book is full of citations to authenticate the statements she makes to be followed up by those interested and to spark further research interest. While working on the 2nd edition of the book she also published academic articles: "Migraine Cause and Treatment" Mental Health in family Medicine, November 23, 2015, open access "Functional Prodrome in Migraines" Journal of Neurological Disorders, January 22, 2016, open access "Are Statistics Misleading Sodium Reduction Benefits?", Journal of Medical Diagnostic Method, February 3, 2016, open access “A Comment on Severe Headache or Migraine History Is Inversely Correlated With Dietary Sodium Intake: NHANES 1999-2004” Angela A Stanton PhD, 19 July 2016 DOI: 10.1111/head.12861 not open access, subscription is required to read it. Dr. Stanton received her BSc at UCLA in Mathematics, MBA at UCR, MS in Management Science and Engineering at Stanford University, PhD in NeuroEconomics at Claremont Graduate University, and fMRI certification at Harvard University Medical School at the Martinos Center for Neuroimaging for experimenting with neurotransmitters on human volunteers. For relaxation Dr. Stanton paints and photographs. Follow her on Twitter at: @MigraineBook
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10 Responses to Cluelessness At Its Best

  1. Deborah Billirakus says:

    Deborah Billirakis #2&3 clueless experience that began in the early ’90”s. I had pneumonia. I was given Cipro not generic brand. After taking the 10 pills I started having 2 very painful feet. I was a single Mother and HAD to work as a server many hours + college course. I was healthy always ate healthy but afyer a few gruling months against my bosses wishes as I loved working, customers asked for me I had to ask to be taken off the schrdule until I could walk. One year 6 months later the pain went away but by then My college prerequisite was an internship at an office. I was assistant New construction assistant in lovely Chicago suburb. I excelled. I was selling si I was offered a Real Estate position. I went on gettin awards for selling 20 million a year in sales and thrived. The real estate market crashed, so I got a office clerk position in order to wait out the drop in the housing market. While I was caring for my Mother in June 2009 I had a chest cold and had to take precautions for my Mother, she had Addison’s Disease and could not get ill or she could die. The doctor prescribed me Levaqin. I did not tell him about my Mother it was a minor illness and he gave me the same med family that crippled me prior in 1993 fot 1 1/2 years I took 2 levaquin anf found my feet in such horrible pain but I had to care for Mom. I suffered through it for 2+ years! My Mother passed so I rested a lot to no relief. I went to see a few podiatrists, ortopedic that did help but the kegt foit remained in terrible pain Dr. Massaro said it was Tarsal Tunnel nerve pressure but my EEG test showed no nerve problem. I told him this he INSISTED the surgery would help. It did not, my foot was purple 4 times the size it should be and he had amateur PT’s that didnt help and the surgeon did not keep a close watch on mu condition. Since 2009 I have been in severe chronic pain, sitting, standing 2 pain flare ups for hours, have not slept a whole night since 2009, then in 2012 the surgery made everything worse, I could not walk at all, my blood preesure was so high and my heart raced, I couldnt think intelligently and today April 2015 I cannot walk, I fall due to a new symptom nerve, knee, lower spine pain and body pain . A cyst in my head behind my eye…FQ’s has made doing snything hatd because I have chronic dibilitating pain 24/7 since 2009- made worse in 2012. I aam bed ridden, no social life, getting divorced because I am never in a good mood. Pain is too much. I NEED HELP SO BAD. OVER 2 LEVAQUIN. My life will be sad unless I find help. NOT NARCITUCS,Ztgey make sleep and sick to my stomach and constipatef in the worst way,..and I juice, eat clean, take the best OMEGA’s and Vitamin D. I have been officially been duagnosed as withloroquinolone toxicity. No cure. FQ’s are black boxed. I was never told how dangerous they could be. Clueless is more like careless and immiral. Deborah Billirakis. Doctir is Dr. John Anderson June 2009.

    Liked by 1 person

    • Very sorry to hear Deborah. I have also been floxed so I know what you mean. I am glad you are getting media attention. I would like to go deeper. We need to change the medical system in which MDs are held in Godly state and with full trust. I am sure there are some who are but 99% of the ones out there are living off of memorized stuff from whatever they learned in school and do not wish to bother updating their knowledge. MD is an “Art of Medicine” and not “Science of Medicine”so they need not actually understand how medications work and what they do. It is wrong that I have to take a pile of printed out FDA warnings when I go to the doctor with yellow highlighted area of importance. I talked to the FDA and they said they have no power to enforce anything. Take Aspirin, for example. The FDA rejected its use as first drug for prevention of heart attacks or strokes because all studies show it does not work, only causes stomach issues. Yet I hardly have a day without a TV ad suggesting to use it every day for prevention!! This should be illegal! Our concern must be to change the entire medical system and not for a single reason like fluoroquinolones but for ALL reasons that allow doctors to be clueless! We need to work together. I will contact you to form an ally and so we can head like a bull knock the system over. We must and we will if enough of us are willing to fight!
      Hugs,
      Angela

      Like

  2. Deborah Billirakus says:

    My first issue is I was a full time caregiver for my Mother whao had Addison’s Disease. I learned all her medical details because her case was as bad as going to sleep a few times before and luckily my younger sister figured out she wasnt waking up. So as her eldest daughter I moved in with her and watched each night shes was ok, she the started got Meniere’s Disease extreme vertigo so I did everything for her…but as time went on she wasnt getting well. My middle sister and I knew she was getting sick too much and I was bringing her in almost once a week. The Doctor insisted we wete too protective, we are rational intelligent women not over emotional. Finally I took her to ER and Dr. Erin Davis came in the hospital and yelled at her, made my Mother cry! My Mom didnt let people make her cry she would have stood up for herself. She was rekeased in severe pain in her back. Finally a symptom blood in her urine..they found out on Sept. 4th, 2011 she had pancreatic, lung, liver cancer spread all over her spine….she passed October 4, 2011 one month later. No apologies, I complained and got the huge brush off. Clueless and rude. I am Deborah Billirakis please feel free to contact me.

    Liked by 1 person

    • I would have really kicked at that point Deborah!!! (At Dr. Davis that is).. You are a very patient person! I feel very sorry for you and my heart is broken. We must change the system! Not yet sure how but we will have to!

      Like

  3. Donna Versace says:

    Just as Virginia mentioned I also have been severely harmed by fluoroquinolone antibiotics and have been dismissed, ridiculed, misdiagnosed, even defamation of character by one doctor in what he put in my medical records. It’s been 3 years since I took that horrid medication and today I still suffer with debilitating pain and have been unemployed for 3 years. I can barely fix my own meals, clean my house due to the pain. As a result of doctor’s ignorance of what is happening I have been denied SSDI by a judge and will be homeless the end of this year. Seems like the medical profession doesn’t seem to care if a patient dies or becomes homeless as a result of their ignorance and harm done. Thousands of us have been harmed by fluoroquinolones yet denial continues to run rampant in the medical field. And hey numbers don’t lie. Just look here at all of the news stories cropping up all over the U.S. of victims harmed by fluoroquinolones. My story will be coming up soon as I was interviewed last week by reporters. It will be the 2nd news airing in my city. Very soon doctors won’t be able to hide behind their denial with more new stories coming out.

    1. September 2014
    Phoenix, Arizona: Arizona Republic
    http://www.azcentral.com/story/news/local/arizona/2014/09/17/critics-demand-stronger-warnings-potent-antibiotics/15759755/

    2. September 2014
    USA Today
    http://www.usatoday.com/story/news/nation/2014/09/17/levaquin-antibiotic-side-effects/15767249/

    3. November 2014
    Phoenix, Arizona: ABC
    http://www.abc15.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

    4. November 2014
    Phoenix, Arizona: NBC
    http://www.azcentral.com/videos/news/local/arizona/2014/11/04/18450053/

    5. November 2014
    Detroit, Michigan: Detroit Free Press
    http://www.freep.com/story/life/wellness/2014/09/17/antibiotics-warning-labels-fda/15770411/

    6. November 14, 2014
    Detroit, Michigan: ABC
    http://www.wxyz.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

    7. November 2014
    Indianapolis, Indiana: ABC
    http://www.theindychannel.com/news/u-s-world/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

    8. November 2014
    Palm Beach, Florida: ABC
    http://www.wptv.com/money/consumer/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

    9. November 2014
    Cincinnati, Ohio: ABC
    http://www.wcpo.com/news/health/healthy-living/levaquin-popular-antibiotic-carries-side-effects-not-listed-on-label

    10. February 2015
    Atlanta, Georgia: COX
    http://www.wsbtv.com/news/news/local/woman-says-popular-antibiotic-levofloxacin-killed-/nj5jY/

    11. February 2015
    Atlanta, Georgia: COX
    http://www.wsbtv.com/news/news/local/patients-suffer-devastating-side-effects-popular-a/nj4Br/

    12. February 2015
    Atlanta, Georgia: COX
    http://www.wsbtv.com/news/news/local/local-woman-says-popular-antibiotic-killed-her-hus/njzwj/

    13. February 2015
    Atlanta, Georgia: COX
    http://www.wsbtv.com/videos/news/another-widow-says-medication-killed-her-husband/vDD6mw/

    14. February 2015
    Miami, Florida: CBS
    http://miami.cbslocal.com/2015/02/13/powerful-antibiotic-could-be-a-prescription-for-danger/

    15. February 2015
    Sacramento, California: CBS
    http://sacramento.cbslocal.com/2015/02/11/patients-say-popular-antibiotic-caused-devastating-side-effects/

    16. February 2015
    Boston, Massachusetts: CBS
    http://www.wsbtv.com/videos/news/channel-2-investigates-complaints-about-popular/vDDZZS/

    17. February 2015
    Minneapolis, Minnesota: ABC
    http://kstp.com/news/stories/S3718761.shtml?cat=1

    18. February 2015
    Charlotte, North Carolina: NBC
    http://www.wcnc.com/story/news/health/2015/02/24/devastating-side-effects-prompt-local-push-to-ban-antibiotic/23977183/

    19. February 2015
    Miami, Florida: CBS
    http://miami.cbslocal.com/video/11172828-powerful-antibiotic-could-be-a-prescription-for-danger-pt-ii/

    20. March 2015
    Dallas, Texas: CBS
    http://dfw.cbslocal.com/2015/03/02/dangerous-antibiotic-could-be-responsible-for-deaths/

    21. March 2015
    Los Angeles, California: CBS
    http://losangeles.cbslocal.com/2015/03/04/southland-firefighter-says-popular-antibiotic-stripped-him-of-his-career/

    22. March 2015
    Kansas City, Missouri: CBS
    http://www.kctv5.com/story/28170151/fda-evaluates-popular-antibiotic-that-patients-say-makes-them-sicker#ixzz3U2vzH8wH

    23. March 2015
    Largo, Florida: ABC
    http://www.wptv.com/news/health/fluoroquinolone-levofloxacin-levaquin-popular-antibiotics-could-be-dangerous

    24. March 2015
    Lynchburg, VA: ABC
    http://www.wset.com/story/28654011/popular-antibiotic-may-be-causing-permanent-damage

    25. March 2015
    Denver, CO: CBS
    http://denver.cbslocal.com/2015/03/30/patients-reporting-serious-adverse-reactions-to-popular-antibiotics/

    26. March 2015
    Seattle, WA: CBS
    http://www.king5.com/story/news/health/body/2015/03/09/nerve-damage-levaquin-levofloxacin/24655569/

    27. April 2015
    North Liberty, Iowa: CBS
    http://cbs2iowa.com/news/features/top-stories/stories/Medication-Warning-110580.shtml

    28. April 2015
    Pittsburgh, Pennsylvania: CBS
    http://pittsburgh.cbslocal.com/2015/04/07/local-doctors-explain-risks-of-taking-levaquin/

    29. April 2015
    Houston, TX: KBRC
    http://www.click2houston.com/news/more-than-2000-adverse-reactions-reported-from-common-prescription-medications/32350128?hc_location=ufi

    Liked by 1 person

  4. Cindy Johnson says:

    I was also given ciproflaxacin numerous times since 2008 for suspected urinary tract infections. Within a few days I was having all kinds of pain, night sweats, abdominal issues and severe anxiety. The doctors never mentioned it could be the ciproflaxacin doing this to me. After two torn rotator cuffs, Three separate hospitalizations for anxiety and heart issues, every test to rule out other causes it is now known that the medication was the cause. Most days I am homebound in pain 24/7. I have permanent nerve and tendon damage. Had the doctor known the risks and adverse reactions of these meds,none of this would have happened. Had the doctors been educated about the medications they are prescribing they would have never kept prescribing it to me.

    Liked by 1 person

  5. Virginia says:

    I was damage permanently in an ER due to uneducated, clueless doctors. I became a victim of Fluoroquinolone Toxicity….from the antibiotic Levaquin…..There are millions FQT victims….WHY?, because our medical society refuses to educate themselves on this horrific life changing damage….and death……it takes victims to connect the dots…..then their doctors deny the patient that FQT even exists….thus no treatment, no cure….only a ruined, disabled, bedridden remaining life…….if any of you are not familiar with Fluoroquinolone Toxicity, please just google it and do not let it happen to you or your loved ones……..

    Liked by 1 person

    • Dear Virginia. Thank you for your comment. I feel so sorry for you. You may have noted I wrote extensively on being floxed since so many of us are–including me–and some have even committed suicide. It is also scary that I have to take FDA warning and advising notes that I signed up to receive every day from the FDA on any warnings and the doctors NEVER read! I carry with me now a giant pack of notes printed and highlight for them what the problems are and why they cannot give me Cipro for example. They are clueless because we have a major problem in that MDs are not scientists (their field is the “Art of Medicine”) and as such they do not know how a medication works. I tested a few. They have no clue of even what Serotonin Syndrome is. One doc who was the director doc of the above named hospital asked “Serotonin what?” when I asked him if he heard of the term. They are ignorant to the core. And hospitals contract them like you would a brick layer. The brick layer is not responsible for the house when it collapses!! Contracted doctors working in hospital are not responsible for their mistakes either and the hospital points a finger that the doctors are only contractors so they are not responsible either. Until we change the system this will remain. We must change the system. We need to unite and fight and attack where it hurts! I am trying to figure out how to do that. That is what this blog is about. If you have any suggestion, please write.
      Hugs,
      Angela

      Like

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