Dear X…,My mother’s autopsy came in and is in complete conflict with the diagnosis one of your doctors gave, which ultimately, after 6 weeks of total torture, took her life away.
Rather than removing the case I actually would prefer to advertise and let the world to know how horrible treatment and malpractice your hospital is involved in–I will find a way to make it publicly known. The saddest part is that even as a scientist doctor myself I was not able to convince your doctors of the wrong diagnosis; they were not willing to prove me wrong or right; I was just ignored and told things like “you mother cannot have serotonin syndrome because it is rare”! I think your doctors are extremely unprofessional and uneducated. If I had an emergency and you were the nearest hospital I would beg to be taken to a hospital farther!
Unfortunately in the case of my mom I was right and the diagnosis I gave was the correct one. Your doctors were wrong and clueless. It cost her life.
The fact that St. Jude doctors are not even willing to listen to patient history and dare to jump into symptom treatment is terrible. If it leads to death, it is horrible.
My ratings are not adjustable; the damage is done. I am glad I am a medical professional and so my review has weight. I hope as many people stay away from St. Jude as possible.
St. Jude provided the worst care a hospital can give. I am glad you are rectifying some of the issues but that will not bring my mom back nor the many other people who were given the status of “hospital delirium” which does not exist; it merely means “we have no clue.” Shame on St. Jude doctors! Nothing will change the rudeness of your doctors and their total incompetence that my mom and I had to endure!
Sorry. I cannot change my experience. It is spilled milk. I hope you understand.
Angela A. Stanton, PhD.
Please feel free co contact me, I only bite if you want to bite me!
Clueless Doctors & Scientists 
Deborah Billirakis #2&3 clueless experience that began in the early ’90”s. I had pneumonia. I was given Cipro not generic brand. After taking the 10 pills I started having 2 very painful feet. I was a single Mother and HAD to work as a server many hours + college course. I was healthy always ate healthy but afyer a few gruling months against my bosses wishes as I loved working, customers asked for me I had to ask to be taken off the schrdule until I could walk. One year 6 months later the pain went away but by then My college prerequisite was an internship at an office. I was assistant New construction assistant in lovely Chicago suburb. I excelled. I was selling si I was offered a Real Estate position. I went on gettin awards for selling 20 million a year in sales and thrived. The real estate market crashed, so I got a office clerk position in order to wait out the drop in the housing market. While I was caring for my Mother in June 2009 I had a chest cold and had to take precautions for my Mother, she had Addison’s Disease and could not get ill or she could die. The doctor prescribed me Levaqin. I did not tell him about my Mother it was a minor illness and he gave me the same med family that crippled me prior in 1993 fot 1 1/2 years I took 2 levaquin anf found my feet in such horrible pain but I had to care for Mom. I suffered through it for 2+ years! My Mother passed so I rested a lot to no relief. I went to see a few podiatrists, ortopedic that did help but the kegt foit remained in terrible pain Dr. Massaro said it was Tarsal Tunnel nerve pressure but my EEG test showed no nerve problem. I told him this he INSISTED the surgery would help. It did not, my foot was purple 4 times the size it should be and he had amateur PT’s that didnt help and the surgeon did not keep a close watch on mu condition. Since 2009 I have been in severe chronic pain, sitting, standing 2 pain flare ups for hours, have not slept a whole night since 2009, then in 2012 the surgery made everything worse, I could not walk at all, my blood preesure was so high and my heart raced, I couldnt think intelligently and today April 2015 I cannot walk, I fall due to a new symptom nerve, knee, lower spine pain and body pain . A cyst in my head behind my eye…FQ’s has made doing snything hatd because I have chronic dibilitating pain 24/7 since 2009- made worse in 2012. I aam bed ridden, no social life, getting divorced because I am never in a good mood. Pain is too much. I NEED HELP SO BAD. OVER 2 LEVAQUIN. My life will be sad unless I find help. NOT NARCITUCS,Ztgey make sleep and sick to my stomach and constipatef in the worst way,..and I juice, eat clean, take the best OMEGA’s and Vitamin D. I have been officially been duagnosed as withloroquinolone toxicity. No cure. FQ’s are black boxed. I was never told how dangerous they could be. Clueless is more like careless and immiral. Deborah Billirakis. Doctir is Dr. John Anderson June 2009.
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Very sorry to hear Deborah. I have also been floxed so I know what you mean. I am glad you are getting media attention. I would like to go deeper. We need to change the medical system in which MDs are held in Godly state and with full trust. I am sure there are some who are but 99% of the ones out there are living off of memorized stuff from whatever they learned in school and do not wish to bother updating their knowledge. MD is an “Art of Medicine” and not “Science of Medicine”so they need not actually understand how medications work and what they do. It is wrong that I have to take a pile of printed out FDA warnings when I go to the doctor with yellow highlighted area of importance. I talked to the FDA and they said they have no power to enforce anything. Take Aspirin, for example. The FDA rejected its use as first drug for prevention of heart attacks or strokes because all studies show it does not work, only causes stomach issues. Yet I hardly have a day without a TV ad suggesting to use it every day for prevention!! This should be illegal! Our concern must be to change the entire medical system and not for a single reason like fluoroquinolones but for ALL reasons that allow doctors to be clueless! We need to work together. I will contact you to form an ally and so we can head like a bull knock the system over. We must and we will if enough of us are willing to fight!
Hugs,
Angela
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My first issue is I was a full time caregiver for my Mother whao had Addison’s Disease. I learned all her medical details because her case was as bad as going to sleep a few times before and luckily my younger sister figured out she wasnt waking up. So as her eldest daughter I moved in with her and watched each night shes was ok, she the started got Meniere’s Disease extreme vertigo so I did everything for her…but as time went on she wasnt getting well. My middle sister and I knew she was getting sick too much and I was bringing her in almost once a week. The Doctor insisted we wete too protective, we are rational intelligent women not over emotional. Finally I took her to ER and Dr. Erin Davis came in the hospital and yelled at her, made my Mother cry! My Mom didnt let people make her cry she would have stood up for herself. She was rekeased in severe pain in her back. Finally a symptom blood in her urine..they found out on Sept. 4th, 2011 she had pancreatic, lung, liver cancer spread all over her spine….she passed October 4, 2011 one month later. No apologies, I complained and got the huge brush off. Clueless and rude. I am Deborah Billirakis please feel free to contact me.
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I would have really kicked at that point Deborah!!! (At Dr. Davis that is).. You are a very patient person! I feel very sorry for you and my heart is broken. We must change the system! Not yet sure how but we will have to!
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Just as Virginia mentioned I also have been severely harmed by fluoroquinolone antibiotics and have been dismissed, ridiculed, misdiagnosed, even defamation of character by one doctor in what he put in my medical records. It’s been 3 years since I took that horrid medication and today I still suffer with debilitating pain and have been unemployed for 3 years. I can barely fix my own meals, clean my house due to the pain. As a result of doctor’s ignorance of what is happening I have been denied SSDI by a judge and will be homeless the end of this year. Seems like the medical profession doesn’t seem to care if a patient dies or becomes homeless as a result of their ignorance and harm done. Thousands of us have been harmed by fluoroquinolones yet denial continues to run rampant in the medical field. And hey numbers don’t lie. Just look here at all of the news stories cropping up all over the U.S. of victims harmed by fluoroquinolones. My story will be coming up soon as I was interviewed last week by reporters. It will be the 2nd news airing in my city. Very soon doctors won’t be able to hide behind their denial with more new stories coming out.
1. September 2014
Phoenix, Arizona: Arizona Republic
http://www.azcentral.com/story/news/local/arizona/2014/09/17/critics-demand-stronger-warnings-potent-antibiotics/15759755/
2. September 2014
USA Today
http://www.usatoday.com/story/news/nation/2014/09/17/levaquin-antibiotic-side-effects/15767249/
3. November 2014
Phoenix, Arizona: ABC
http://www.abc15.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
4. November 2014
Phoenix, Arizona: NBC
http://www.azcentral.com/videos/news/local/arizona/2014/11/04/18450053/
5. November 2014
Detroit, Michigan: Detroit Free Press
http://www.freep.com/story/life/wellness/2014/09/17/antibiotics-warning-labels-fda/15770411/
6. November 14, 2014
Detroit, Michigan: ABC
http://www.wxyz.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
7. November 2014
Indianapolis, Indiana: ABC
http://www.theindychannel.com/news/u-s-world/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
8. November 2014
Palm Beach, Florida: ABC
http://www.wptv.com/money/consumer/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label
9. November 2014
Cincinnati, Ohio: ABC
http://www.wcpo.com/news/health/healthy-living/levaquin-popular-antibiotic-carries-side-effects-not-listed-on-label
10. February 2015
Atlanta, Georgia: COX
http://www.wsbtv.com/news/news/local/woman-says-popular-antibiotic-levofloxacin-killed-/nj5jY/
11. February 2015
Atlanta, Georgia: COX
http://www.wsbtv.com/news/news/local/patients-suffer-devastating-side-effects-popular-a/nj4Br/
12. February 2015
Atlanta, Georgia: COX
http://www.wsbtv.com/news/news/local/local-woman-says-popular-antibiotic-killed-her-hus/njzwj/
13. February 2015
Atlanta, Georgia: COX
http://www.wsbtv.com/videos/news/another-widow-says-medication-killed-her-husband/vDD6mw/
14. February 2015
Miami, Florida: CBS
http://miami.cbslocal.com/2015/02/13/powerful-antibiotic-could-be-a-prescription-for-danger/
15. February 2015
Sacramento, California: CBS
http://sacramento.cbslocal.com/2015/02/11/patients-say-popular-antibiotic-caused-devastating-side-effects/
16. February 2015
Boston, Massachusetts: CBS
http://www.wsbtv.com/videos/news/channel-2-investigates-complaints-about-popular/vDDZZS/
17. February 2015
Minneapolis, Minnesota: ABC
http://kstp.com/news/stories/S3718761.shtml?cat=1
18. February 2015
Charlotte, North Carolina: NBC
http://www.wcnc.com/story/news/health/2015/02/24/devastating-side-effects-prompt-local-push-to-ban-antibiotic/23977183/
19. February 2015
Miami, Florida: CBS
http://miami.cbslocal.com/video/11172828-powerful-antibiotic-could-be-a-prescription-for-danger-pt-ii/
20. March 2015
Dallas, Texas: CBS
http://dfw.cbslocal.com/2015/03/02/dangerous-antibiotic-could-be-responsible-for-deaths/
21. March 2015
Los Angeles, California: CBS
http://losangeles.cbslocal.com/2015/03/04/southland-firefighter-says-popular-antibiotic-stripped-him-of-his-career/
22. March 2015
Kansas City, Missouri: CBS
http://www.kctv5.com/story/28170151/fda-evaluates-popular-antibiotic-that-patients-say-makes-them-sicker#ixzz3U2vzH8wH
23. March 2015
Largo, Florida: ABC
http://www.wptv.com/news/health/fluoroquinolone-levofloxacin-levaquin-popular-antibiotics-could-be-dangerous
24. March 2015
Lynchburg, VA: ABC
http://www.wset.com/story/28654011/popular-antibiotic-may-be-causing-permanent-damage
25. March 2015
Denver, CO: CBS
http://denver.cbslocal.com/2015/03/30/patients-reporting-serious-adverse-reactions-to-popular-antibiotics/
26. March 2015
Seattle, WA: CBS
http://www.king5.com/story/news/health/body/2015/03/09/nerve-damage-levaquin-levofloxacin/24655569/
27. April 2015
North Liberty, Iowa: CBS
http://cbs2iowa.com/news/features/top-stories/stories/Medication-Warning-110580.shtml
28. April 2015
Pittsburgh, Pennsylvania: CBS
http://pittsburgh.cbslocal.com/2015/04/07/local-doctors-explain-risks-of-taking-levaquin/
29. April 2015
Houston, TX: KBRC
http://www.click2houston.com/news/more-than-2000-adverse-reactions-reported-from-common-prescription-medications/32350128?hc_location=ufi
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I actually have a Citizen petition against these drugs at the FDA. Comments are open so please place a comment. It will help remove this drug class from easy prescription: http://www.regulations.gov/#!docketDetail;D=FDA-2014-P-1753 Please fill in a comment. Chose any. They are all the same.
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I was also given ciproflaxacin numerous times since 2008 for suspected urinary tract infections. Within a few days I was having all kinds of pain, night sweats, abdominal issues and severe anxiety. The doctors never mentioned it could be the ciproflaxacin doing this to me. After two torn rotator cuffs, Three separate hospitalizations for anxiety and heart issues, every test to rule out other causes it is now known that the medication was the cause. Most days I am homebound in pain 24/7. I have permanent nerve and tendon damage. Had the doctor known the risks and adverse reactions of these meds,none of this would have happened. Had the doctors been educated about the medications they are prescribing they would have never kept prescribing it to me.
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Very sorry to hear Cindy! I totally feel your pain since I too was floxed. I have a citizen’s petition at the FDA. It is still open for comments. Please fill in a comment to remove these drugs from prescription chance: http://www.regulations.gov/#!docketDetail;D=FDA-2014-P-1753
Hugs,
Angela
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I was damage permanently in an ER due to uneducated, clueless doctors. I became a victim of Fluoroquinolone Toxicity….from the antibiotic Levaquin…..There are millions FQT victims….WHY?, because our medical society refuses to educate themselves on this horrific life changing damage….and death……it takes victims to connect the dots…..then their doctors deny the patient that FQT even exists….thus no treatment, no cure….only a ruined, disabled, bedridden remaining life…….if any of you are not familiar with Fluoroquinolone Toxicity, please just google it and do not let it happen to you or your loved ones……..
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Dear Virginia. Thank you for your comment. I feel so sorry for you. You may have noted I wrote extensively on being floxed since so many of us are–including me–and some have even committed suicide. It is also scary that I have to take FDA warning and advising notes that I signed up to receive every day from the FDA on any warnings and the doctors NEVER read! I carry with me now a giant pack of notes printed and highlight for them what the problems are and why they cannot give me Cipro for example. They are clueless because we have a major problem in that MDs are not scientists (their field is the “Art of Medicine”) and as such they do not know how a medication works. I tested a few. They have no clue of even what Serotonin Syndrome is. One doc who was the director doc of the above named hospital asked “Serotonin what?” when I asked him if he heard of the term. They are ignorant to the core. And hospitals contract them like you would a brick layer. The brick layer is not responsible for the house when it collapses!! Contracted doctors working in hospital are not responsible for their mistakes either and the hospital points a finger that the doctors are only contractors so they are not responsible either. Until we change the system this will remain. We must change the system. We need to unite and fight and attack where it hurts! I am trying to figure out how to do that. That is what this blog is about. If you have any suggestion, please write.
Hugs,
Angela
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