Is This Really The Industry’s Response to a Preventable Illness? Eek!

I am posting a copy-paste here from Facebook from the Neuropathy Association site so you can see how the industry views those who have been hurt by the quinolone class drugs, such as Cipro and others. Please read. The industry answer will shock you. I placed the Association’s answer as a quote so you can distinguish easily:

Aliza’s question:

Hello Dr. Levine: I have, let’s say, “full body” nerve damage, to put it simply, (CNS damage as well as multi-systemic PN, basically everything from head to toe) — as do most of my fellow “floxies” (people with FQ Toxicity Syndrome due to Fluoroquinolone antibiotics)… and what I’d really like to know is…
…. how on earth is it even possible for so many Dr.s — including Neurologists — to STILL be so unaware of FQ toxicity — and it’s well-documented links to neuropathy??
I’m not a “Dr. basher” and I by no means wish to offend anyone. But at the same time, the ignorance is inexcusable! There are thousands upon thousands of us who desperately need help and aren’t getting it. We’re left to try to self-diagnose and self-heal because our Dr.s aren’t keeping up with with medical developments and/or are refusing to see the writing on the wall with regard to FQs (while even the FDA has a black box warning that they can cause permanent peripheral neuropathy and law suits are springing up.)
Thank you in advance for any input you can give on this all-too-common problem.

Response by the Neuropathy Association doctor:

Aliza,
I am not sure how to answer your question. I am sure it can [be] frustrating for physicians not to be aware of this. From a neurologist perspective I would just say that once toxicity develops our management of the neuropathy does not differ from that of other neuropathies.In other words, we use medications to treat the symptoms (such as gabapentin or Lyrica).
DS (corrected for errors and emphasis added)

There are many answers to this particular thread and for lack of permission from the individuals to show their identity I will only post my response:

  • DrAngela A. Stanton When I first read the response of the doctor here, I nearly fainted. So, Dr. DS, what you are suggesting is that the medical community should be choosing to treat symptoms of a preventable disease rather than prevent it? Here the cause of neuropathy is clearly evident. Really?People die, commit suicide in their pain from the side effects of the drugs and your association suggests to take Lyrica (a horrible drug that is so addictive it takes years to get off) to treat the symptoms instead of stopping the cause from happening altogether?There are very few illnesses in our lifetime we know the precise cause is preventable. This is one of those. We know what is causing it. What happened to the oath of “DO NO HARM”?It is a shame on the medical industry (including your company) that making money on the sick by treating it rather than prevent it is “better” for you. Am I correct in my assumption? Since your answer translated to that precise statement to me.

    If I am correct, we have some massive work to do to interrupt the methodologies of the industry that lives off of the pain and suffering of others.

    Comments are welcome as always and now more than ever! This is now a blog of shame!
    Angela

About Be Healthy

Angela A Stanton, PhD, is a Neuroeconomist who evaluates changes in behavior, chronic pain, decision-making, as a result of hormonal variations in the brain. She lives in Southern California. Her current research is focused on migraine cause, prevention and treatment without the use of medicines. As a migraineur, her discovery was helped by experimenting on herself. She found the cause of migraine to be at the ionic level, associated with disruption of the electrolyte homeostasis, resulting from genetic mutations of insulin and glucose transporters, and voltage gated sodium and calcium channel mutations. Such mutations cause major shifts in a migraine brain, unlike that of a non-migraine brain. A non-migraineur can handle electrolyte changes on autopilot. A migraineur must always be on manual guard for such changes to maintain electrolyte homeostasis. The book Fighting The Migraine Epidemic: How To Treat and Prevent Migraines Without Medicines - An Insider's View explains why we have migraines, how to prevent them and how to stay migraine (and medicine) free for life. As a result of the success of the first edition of her book and new research and findings, she is now finishing the 2nd edition. The 2nd edition is the “holy grail” of migraines, incorporating all there is to know at the moment and also some hypotheses. It includes an academic research section with suggestions for further research. The book is full of citations to authenticate the statements she makes to be followed up by those interested and to spark further research interest. While working on the 2nd edition of the book she also published academic articles: "Migraine Cause and Treatment" Mental Health in family Medicine, November 23, 2015, open access "Functional Prodrome in Migraines" Journal of Neurological Disorders, January 22, 2016, open access "Are Statistics Misleading Sodium Reduction Benefits?", Journal of Medical Diagnostic Method, February 3, 2016, open access “A Comment on Severe Headache or Migraine History Is Inversely Correlated With Dietary Sodium Intake: NHANES 1999-2004” Angela A Stanton PhD, 19 July 2016 DOI: 10.1111/head.12861 not open access, subscription is required to read it. Dr. Stanton received her BSc at UCLA in Mathematics, MBA at UCR, MS in Management Science and Engineering at Stanford University, PhD in NeuroEconomics at Claremont Graduate University, and fMRI certification at Harvard University Medical School at the Martinos Center for Neuroimaging for experimenting with neurotransmitters on human volunteers. For relaxation Dr. Stanton paints and photographs. Follow her on Twitter at: @MigraineBook
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4 Responses to Is This Really The Industry’s Response to a Preventable Illness? Eek!

  1. Roxanna Partain says:

    So happy to see this being addressed. I have a wonderful Dr. that I respect very much! He has gone out of his way to help me. We have no health ins., which prevents me from being able to go to a specialist. So I depend on him for my care. The problem is, I have more knowledge of the neuropathy that I am dealing with, than he does. I truly wish that our drs would be brought up to snuff on this terrible disease.

    Like

    • It is very new to most doctors Roxanna; in fact just yesterday a friend was prescribed one of these antibiotics and I asked her to print out the FDA black box page to educate her doctor. It is a shame that we have to educate our doctors but we must do what we must!! Unfortunately this has to be a “grass rots process” because the pharmaceuticals push doctors to make their choices knowing that doctors have little time to read up on research!

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  2. Thank you! I will do the best I can! 🙂

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